I kept looking for some place to talk about what was happening to me with people who understood, who were living with it just like me. It’s hard to figure out when it happens so quickly. Then, you hear other people say the very same things you’ve felt or been through and suddenly you realize it’s not you. You’re not the only one.”
There’s continuity here, you really get to know the people in the group. There is a background of familiarity because everyone is from the local towns and communities and that’s important for me.
“I tried going to a support group in Boston and was in a group for awhile before I heard about CSC-MSS. It was even a group for people with my kind of cancer but what I found was that because people came from all over the place it was hard to have a consistent group of people and even though the members of my group here, mostly have a cancer different from mine, that’s okay because what’s important is that we all understand what it’s like to have cancer and to go through treatment and to try to figure out how to best go on with our lives.
We’ve been dealing with this for over six months now and I kept looking for someplace to go to talk about what was happening with other people who really understood, other people who were living with it the same way I was. It’s hard to figure out what’s happening and then you begin to hear other people talk about the same things that are on your mind or things you’ve been through or felt and all of a sudden you realize it’s not you, you’re not the only one.
It’s hard to feel like you need to pay attention to yourself. Bill is going through this terrible experience and getting treatment and feeling sick. I felt guilty about thinking about myself and my worries or how tired or upset I was.
My friend told me about this place so I thought I should at least check it out and when I found there was a group for caregivers I knew I should come – I’m so glad I did. It makes a difference, certainly for me but for Bill and our whole family too.